March 7th 2011 My MRI Scan

I had my MRI scan yesterday ,it`s been 7 years since my last one (due to an almighty NHS cock up!) ,i forgot just how scary they are ,i had a bit of a panic attack when i lay down and the hannibal lecter type mask was put on my face,didn`t think i could do it ,i felt claustrophobic,they have moved the MRI scanner into a mobile unit and i think that`s why it seemed even more claustrophobic and freaked me out ,i asked to be blind folded and then i did some deep breathing and that seemed to do the trick ,they pulled me in the" tunnel of doom" for 20 minutes and i must of had a total of 10 different head scans .
I now have to wait for the results ............
.




I went for a 6 mile run this morning and this is me talking as i am running :)

My little man friend who stands at the bus stop in the mornings and watches me run past :)

"A positive mind anticipates happiness,joy,health and a successful outcome of every situation and action "

DECEMBER AND JANUARY HAVE BEEN EXTREMELY COLD AND I HAVE BEEN RUNNING MOST MORNINGS IN THE DARK, AND IN SNOW,ICE ,FOG ,WIND AND RAIN AND IN TEMPERATURES ON AVERAGE BETWEEN -3 AND -6 DEGREES WITH JUST OWLS AND FOX`S FOR COMPANY .
THIS IS WHEN BEING A LITTLE MAD AND A VERY DETERMINED LADY HELPS KEEP YOU GOING !
I FILMED MYSELF RUNNING ,JUST TO SHOW HOW DARK IT IS ,I LEAVE AS EARLY AS 4.30 SOME MORNINGS AND YOU CAN ALSO SEE JUST HOW MAD I AM, AS IF YOU DON`T KNOW THAT ALREADY LOL!!!




RUNNING IN TOTAL DARKNESS APART FROM THE LIGHT OF THE MOON


ONE MOON ,ONE STREET LIGHT AND ONE ME !:)

MY family CHRISTMAS 2010

I have had the best Christmas ever with my family and now after all the long hours i`ve worked and all that preparing for Xmas my thoughts are now on my trip to Ghana in July .

I am practising how to make the best paper aeroplanes so the children and i can colour them brightly then have fun and fly around the classroom after all we musn`t waste paper must we :) !!!!

I can`t wait to get them all running around after me,think it will be the other way round don`t you ? !!!

Just to update you my MRI scan is on the 7th March 2011 :)

If you would like to find me on Facebook here is my link http://www.facebook.com/profile.php?ref=profile&id=1004029066

Make sure you say hello and mention my blog :)

HAPPY NEW YEAR 2011!!!

"SLEEP ,EAT,LOVE AND RUN"!!!!!!!!!!

Well Christmas is nearly here ,i am working nearly 50 hours a week and i am running as usual despite the freezing cold weather every morning as early as 4.30 some mornings before i leave for work !
Nothing stops me from running !!!!!!!!!!!!!!!!!!!!!
I am so tired yet i will still find the time ,running is my life and i know how important it is for me to keep doing this and how much it helps keep me fit for my challenges and also keeps me positive !
Positive mind ,healthy body !
I know this will prevent my tumour from growing .

"My blog has been published on a site for woman runners around the world ,this site is to inspire and support woman runners"

http://blog.women-running-together.com/?p=2878

"I`M AMAZING!! I`m a handful, i`m strong willed, independent ,a bit outspoken and i tell it like it is .I make mistakes, i am sometimes out of control and at times hard to handle . But if you can `t handle me at my worst then you sure as hell don`t deserve me at my best ".

I found out yesterday i missed out on 7 years of MRI scans due to the fact i changed address . I am amazed that this has happened ,i presumed my doctor would of noticed this and would have informed the hospital after all it is a brain tumour but obviously we have to except we are just a number but i am always a positive person at times like this and as i have no symptoms of headaches etc ,i am sure my tumour is the same size it was 7 years ago :)

This is my latest video raising awareness of RETINITIS PIGMENTOSA and my RP Support Group,all these people in the video have RP and are members of the group ,they are amazing people dealing with the fact they may one day lose all their sight .

I searched the internet for a support group for people with an eye disease Retinitis Pigmentos after meeting someone i knew with RP and could find very little help and support for them so i joined Facebook and set up my own support group for them and this has grown to to nearly 3,000 members ,people have joined not only from the UK but also America, Canada, Australia and countries all around the world .

I have received many messages from people with RP, doctors,opthalomogists ,and eye surgeons around the world thanking me for all i do to help them ,my group not only informs people with RP but also the experts because RP is so rare only people with this eye condition can inform us what is really like, for example they lose all their pheriphial vision and end up with a tunnel vision and find this very difficult and then they have to fight with the fact they will have to one day use a cane and the fear of the stigma related to using a cane becomes too much but having the group enables them to share their fears .

I make Retinitis Pigmentosa Awareness videos to raise awareness of RP and the Support Group .

To be told you may lose your sight is something most of us could never envisage but as we get older the statistics tell us blindness and deafness is on the increase .Retinitis Pigmentosa is a genetic and very complex eye condition .

I am doing all i can to help make their life easier by just being there for them and I look in on my group everyday and if i see a post and someone needs help i will do all i can to get them the answer they need .

I work full-time so i sometimes may fall asleep at the computer but it is all worth while just to see these people find new friendships and get all the support they need .

I probably know more about the pain my friends go through then any other sighted person on this planet ,i read posts that make me want to cry sometimes but i am fortunate to have enough empathy to be able to feel their pain and be able to help them :)

I made two versions of this video hope you enjoy them both :))

Friday 24 th September 3 PEAKS CHALLENGE 2010 by the end of the challenge I had taken 70,000 steps and walked 22 miles ,Climbed 3 mountains with a combined height of 3407 metres ,travelled 475 miles ........................but the biggest success to come out of this very tough challenge was the fact my team of 6 raised £9,000 for the charity Sense:) Our journey begins leaving Glasgow airport and travelling to Ben Nevis
We arrive at Ben Nevis and here we are getting ready to climb our first mountain ! Our climb begins ..................... Nearly at the summit .................. Ben Nevis summit ,first mountain done up/ down in 5 hours and 45 minutes Below Ben Nevis Summit

Next mountain to climb Scafell Pike We begin our climb in the dark at 5.00 in the morning .................. Here is a video of us on our way to Scafell Pike ,it`s so dark you are unable to see anyone just hear my voice :)

After travelling through the night from Scotland to England we finally reach our next mountain with very little sleep ,in my case no sleep . Above we finally reach the Scafell Pike summit and climbed it in 4 hours up/down . It was also -12 degrees at the top of the mountain , ice on the rocks and boulders !

Next Snowden!

You can see the Snowden summit through the windscreen ...........................

Me on the top of Snowden extremely tired :) Only 9 of us out of 23 climbers managed to get up the top of the 3 mountains ,i managed to get to the finger point on top of Ben Nevis due to a lady in my group that was so lovely but kept on talking and had to stop due to tiredness which slowed us up and couldn`t have my pic at the summit but on the way down we rescued a family off the mountain who missed the Snowden train and were stranded whilst climbing down in the dark which more than made up for it .There was an eldery couple and a child ,they had no torches and it was dark so i was pleased that my ego and the same of our expedtion leader was smaller than that of the leader and the group in front who passed them by and left them for us to resue so they could get better times and bigger egos !

Even more annoying was the fact i could have had time to get to the summit by the time we rescued the family but it was a great joy to see the family we resued so happy to be safe and we gave them a lift in our mini bus :)

One of my favourite challenges because it was so tough and i want to do it all over again ,never thought i`d say that when i was doing it but it was an absolutely fantasic experience !!!