This is my latest video raising awareness of RETINITIS PIGMENTOSA and my RP Support Group,all these people in the video have RP and are members of the group ,they are amazing people dealing with the fact they may one day lose all their sight .

I searched the internet for a support group for people with an eye disease Retinitis Pigmentos after meeting someone i knew with RP and could find very little help and support for them so i joined Facebook and set up my own support group for them and this has grown to to nearly 3,000 members ,people have joined not only from the UK but also America, Canada, Australia and countries all around the world .

I have received many messages from people with RP, doctors,opthalomogists ,and eye surgeons around the world thanking me for all i do to help them ,my group not only informs people with RP but also the experts because RP is so rare only people with this eye condition can inform us what is really like, for example they lose all their pheriphial vision and end up with a tunnel vision and find this very difficult and then they have to fight with the fact they will have to one day use a cane and the fear of the stigma related to using a cane becomes too much but having the group enables them to share their fears .

I make Retinitis Pigmentosa Awareness videos to raise awareness of RP and the Support Group .

To be told you may lose your sight is something most of us could never envisage but as we get older the statistics tell us blindness and deafness is on the increase .Retinitis Pigmentosa is a genetic and very complex eye condition .

I am doing all i can to help make their life easier by just being there for them and I look in on my group everyday and if i see a post and someone needs help i will do all i can to get them the answer they need .

I work full-time so i sometimes may fall asleep at the computer but it is all worth while just to see these people find new friendships and get all the support they need .

I probably know more about the pain my friends go through then any other sighted person on this planet ,i read posts that make me want to cry sometimes but i am fortunate to have enough empathy to be able to feel their pain and be able to help them :)

I made two versions of this video hope you enjoy them both :))